Links to Resources
USA.GOV TUTORIALS AVAILABLE!
Everyone knows the U.S. Government’s web site is expansive. But did you know you can learn how to better use it? Click on this link to find tutorials about how to navigate and make your interaction with the federal government just a little bit easier!
Index
Delaware State Links
Centers for Disease Control Manual
General TBI and General Resource links
Children
Education
Other Brain Injury and Related Organizations
Delaware
Delaware, State Council for Persons with Disabilities
Delaware Department of Health & Social Services
Delaware Division of Developmental Disabilities Services
Delaware Division of Services for Aging and Adults with Physical Disabilities
Delaware Division of Substance Abuse and Mental Health
Delaware Division of Social Services
Delaware, State Service Centers
As of January, 2011, Delaware’s ABI Waiver Program has been absorbed by the Elderly & Disabled Superwaiver. Download your copy by clicking here.
TBI Affects More Than 30 Million Americans
The Centers for Disease Control and Prevention estimates 3.17 million people ( over 1% of the U.S. population) live with a life-long disability as a result of TBI. Research suggests that for every person hospitalized with a brain injury, three to five others who are injured do not receive any care at all. This is the Hidden TBI population and includes children on the playground, young athletes, battered partners and children, and returning service members. The TBI Research Review has published a Policy and Procedure manual for diagnosing, treating and living with the lifelong effects of traumatic brain injuries. You can access this manual here (pdf)
General
Mount Sinai Medical Center TBI Consumer Reports
www.tbihome.org - a chat room with list of additional websites.
www.waiting.com - helpful for those who are waiting for someone in a coma
www.tbihelp.org - helpful information on TBI
www.wellspouse.org - resource for support as a primary caregiver of one's spouse
www.injuryboard.com/help-center/headandbrainijuries/ - a series of articles about head and brain injuries
www.ride-away.com Ride Away is America's largest provider of accessible vehicles and vehicle modifications including hand controls, wheelchair and scooter lifts, ramps, raised doors, lowered floors and specialized gas, brake and steering controls. (11 East Coast locations)
Medical Assistance for Workers with Disabilities (MAWD)
MAWD is a health insurance program for individuals who are adults, who are disabled, and who are working. Adults who are accepted into this program get full Medical Assistance benefits, including full prescription coverage, by paying a monthly premium of 5% of their “countable income." MAWD can be your primary insurance or your secondary insurance, even if you are covered by Medicare, since your primary insurance may not cover all of your health care needs, co-payments, and deductibles. There is no minimum requirement for the number of hours you must work or how much you must earn to be eligible for MAWD; however, income and resource limits do apply to this program. Families or professionals who have questions regarding this relatively underutilized benefit should call the Law Offices of Joseph L. Romano, Esquire at 1-800-331-4134. You will also find this information in Chapter 8 of our Resource Directory.
2009 Medicare Guide Available
The 2009 Guide to Health Insurance for Medicare Beneficiares has been released by the State of Delaware. This will help you to better understand your benefits, and how to best use the Medicare program. Call 1-800-336-9500 or click here to download your copy.
Report on Advances in Motor Vehicle Crash Response from the CDC
Download your copy of the report here. (pdf)
Children
Parent Information Center of Delaware (PIC) helps parents of children with disabilities become effective partners in their children’s education. Download their latest newsletter.
Education
Funding for students with disabilities
Want to go back to school? There is a way! Students with disabilities may be eligible for financial aid. Click here to find out more!
TechMatrix - Assistive Technology Tools for Learning
Want to continue your education but need assistive technology? Check out TechMatrix to find learning support. Click here to find out more.
Annual Conference
BIAD hosts its annual Brain Injury Conference in October of each year. Our conference provides education for brain injury survivors, health care providers, and advocates. Each year we attempt to include sessions that will be helpful to all of our registrants. CEU's are available for health care professionals, therapists, and Brain Injury Specialists. Check our Calendar of Events for information about our upcoming conference!
Other Brain Injury Organizations
Brain Injury Association of America - http://www.biausa.org
National Association of State Head Injury Administrators - http://www.nashia.org
Coma Recovery Association - http://www.comarecovery.org/index.html
National Aphasia Association - http://aphasia.org
National Headache Foundation - http://www.headaches.org
Vestibular Disorders Association - http://www.vestibular.org
American Stroke Association - http://www.strokeassociation.org
The Neurotrauma Registry - www.neurotraumaregistry.com
Encephalitis Global - http://groups.msn.com/EncephalitisGlobal
American Brain Tumor Association - http://www.abta.org/support.htm
National Center on Shaken Baby Syndrome - http://www.dontshake.com/
Motorcyclists - http://www.motorcycleaccidentvictims.org/
